How
a Peer Support Training Program Transformed My Life
By
Emily
Peers
Understand Where You Are Coming From
I
always had this feeling that I was not good enough, despite putting
my all into school, gymnastics, running, and art. In fact, I felt I
must be bad and needed to be punished. That’s when I started
hurting myself.
In
retrospect, I excelled at sports, was on the honor roll and received
special awards at graduation. Somehow, I was never satisfied with my
accomplishments. I graduated high school hiding everything. But the
summer leading up to college was when things started falling apart.
Whatever was “my fault” led to self-harm and inner-pain. I made
it to college, but only for a short while. Soon after heading off on
my own, I was sent to the hospital and that was the end of that. So
began my life as a patient.
I
entered a program that was supposed to help me, yet I was isolated,
medicated and told that everything I was doing was wrong. This
worsened my condition. “I’m bad, I deserve to be punished” was
my motto.
I
went through one hospitalization after another, until the day I was
told I needed 24-hour supervision and was sent to Pilgrim State
Psychiatric Hospital. I felt I would never be ‘normal’ again.
After
months of one-to-one supervision, medication and everything else that
came with being hospitalized, I decided to shut up, comply and act
like a ‘good patient’ in order to be released. I was let out and
sent to a group home. A few months later, after a suicide attempt, I
was back at Pilgrim Hospital by court order.
At
Pilgrim, I was often forced to take medication to make me more
docile. If I didn’t comply, I was restrained in the seclusion room
and given a shot to “calm me down.” I was always on one-to-one
and experienced anxiety attacks every time I was naked or needed to
use the toilet in front of the stranger assigned to me, so I avoided
showers and bathrooms at all costs. Their most degrading and
memorable solution were laxatives.
When
they felt the medications weren’t working, I was told I needed
electroshock treatment (ECT), and that, since I was too young to make
decisions about my treatment, they made the decision for me. I was
21-years-old.
The
ECT caused brain damage. I developed epilepsy and still have learning
and memory problems. Along with the loss of some painful memories
went the loss of recalling a great deal of the wonderful people,
things and experiences throughout my life. Was it worth it? While at
Pilgrim State, I witnessed forced treatment, neglect and confinement.
After my two-year stay, I went back to a group home, day treatment
and more meds than you can count on your hands and feet.
I
resigned myself to the fact that I was a full-time psychiatric
patient. I cut and burned my body until there was only scar tissue. I
overdosed and ingested anything toxic, hoping it would be the end. I
planned and attempted suicide on multiple occasions. Like clockwork,
I would be in and out of the hospital every few months. I felt alone.
I was dependent upon medication, couldn’t hold a job and had
trouble in school. I had a terrible self-image. Then came the stigma.
I was no longer Emily. I was an illness: major depressive disorder,
bipolar, schizoaffective. Whatever they labeled me, I became.
My
metamorphosis began while I was interviewing to get into a class that
trained peer supporters. I anticipated not being accepted into the
class and began perfecting my suicide and how I would be presented at
my funeral. My doctor was worried about me and sent me to the
hospital as a suicide risk. I was there for two weeks and while I was
there, found out that I was accepted into the class. I was discharged
from the hospital and the next day started my class.
My
new friendships, relationships and experiences all began to matter to
me. The real Emily buried beneath the darkness began to emerge. I was
breaking out of my shell, playing music, singing, dancing and
socializing. I learned so much sitting in a small room all day with
peers who understood where I was coming from. They helped and
inspired me. I discovered that I was not alone. If I chose to, I
could use my experiences to help others, which I did and have
continued to do. Everything I went through was not a waste of time—it
was precious knowledge I could pass on to someone like the old Emily,
who thinks she's a bad person, who thinks she can’t do something,
who needs a voice.
The
world works in strange and mysterious ways. I went through hell so I
could appreciate the wonderful things I have now and all that I’ve
worked for. These days I’m a peer supporter, an advocate and a
member of society, not the system. I’m living with my wonderful
boyfriend, have a job, volunteer, and am an independent woman doing
things on my own. I’m finally unstuck and still moving forward.
Recovery is a bumpy road with many potholes, but it’s much better
than being stuck in the ditch I thought I’d never climb out of.
Pullout:
“I’m finally unstuck and still moving forward. Recovery is a
bumpy road with many potholes, but it’s much better than being
stuck in the ditch I thought I’d never climb out of.”
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