Editor-At-Large/As
I See It: The Dangers of Lithium
A
Column by NYC
Voices'
Business Manager Marvin Spieler
Exercise
Your Consumer's Right to Choose
After
being on the medication Lithium Carbonate (Lithium) for twenty-one
years, I became toxic. I knew potentially I could become toxic, but I
was playing the odds. However, I lost in the end. Now I am on
dialysis as a result, as Lithium ruined my kidneys.
The
kidneys: we all have two of them, they filter our body’s blood to
keep it clean. The kidneys excrete the waste products through the
urine. Now as a result, I am with two kidneys that are almost
useless. Dialysis acts as my artificial kidneys. Without dialysis, I
would die. That’s the bottom line. Go on dialysis or die.
Here’s
the problem that I now have as a result. I must go to a dialysis
center three times a week. I spend approximately five hours each day
there. Actually, three hours on the dialysis machine, and usually
about two hours in transportation time to and from the center.
The
result is that I waste three days of what used to be productive time
doing other things. I used to be a mental health advocate. However, I
had to drop my advocacy work. I can no longer attend meetings, go to
conferences, or go on trips to Albany with NYAPRS members to keep
legislators from cutting the mental health budget.
At
first I became depressed over my new reality, but that has passed. I
am used to my new lifestyle. I finally accepted the fact that I had
to drop my mental health advocacy work. However, it is a great loss.
Why
am I telling you all this? GET OFF LITHIUM NOW IF YOU TAKE THIS
DRUG!! Fortunately for you, now there are substitutes like Depokote
or Tegrotal that work just as well for most mental health consumers.
Only in rare cases, a few consumers have no choice but to stay on
Lithium. I tried Depokote and Tegrotal. Tegrotal is now my drug of
choice. I am doing as well on Tegrotol as I was on Lithium. Like
Lithium, I need periodic blood tests to see that the level is in
balance, so that in itself isn’t new for me.
Again
my advice to you is this. Seriously, have a discussion with your
psychiatrist. See what he says. Listen to his point of view. But in
the end you have “the right” to determine what meds you take and
don’t take. That is a right you have. Use your judgment. Mental
illness doesn’t kill your right to think or choose. Use your brain
to control your health.
When
I went on Lithium there wasn’t much else to control my moods. It
worked. I had twenty-one glorious years of continuous freedom from
psych wards on Lithium. I built a life for myself. I made long-term
friends, met a wonderful woman and married her. We decided on no
children as we both had mental illness and didn’t want to
potentially pass it onto our children. That is my only regret.
Children would possibly have been a blessing, but that was our choice
back then. Medications were crude and usually not very effective. We
didn’t and couldn’t anticipate a modern second generation on
psychiatric meds. So my advice is get married and have kids if you
desire to. However, be ready for the turmoil your kid or children may
have initially with mental illness. Mental illness is like no other
illness I know of.
By
the way, I am proud to say I am hospital-free for over thirty years
now, a record I am proud of. This is one of my major accomplishments
in life. To be free of the goons in psych hospitals is a real joy. To
no longer worry about a hospitalization as long as I take my meds
daily, I do thank medical research and modern drug production.
How
Long Have You Been On Meds?
To
be blunt, the drug companies in this country have pushed their
products to the point of being the totally acceptable panacea to help
the mentally ill. It is my understanding that in Europe, medications
are used as a last resort.
Also,
drug company representatives, meaning salesmen and psychiatrists who
represent drug companies, have brain-washed most of our American
psychiatrists. We consumers, as a result, have been practically
forced to take meds for life. It is my assumption that after “x”
number of years on medication, it is almost impossible to get off
meds on our own.
Most
psychiatrists swear never to take you off meds. That is what they are
probably taught. Otherwise, why is it so hard to find a psychiatrist
who will help get you off? In the end, we ourselves begin to believe
the common line of thought about staying on them.
After
a lifetime of medication, my concentration and memory are shot. As a
result, I haven’t been able to read a book in years. I guess I must
be thankful not to be hospitalized for years on end. Thank you, drug
industry. HAH!!
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