Recognizing my illness, I lost friends but I gained myself
“(My good fortune is not that I’ve recovered from mental
illness. I have not, nor will I ever.) My good fortune lies in having found my
life.”—Elyn R. Saks, from The Center Cannot Hold.
As part of my recovery from a nasty manic episode, I have
been spending time with an elderly couple from church. They are lovely people
and the woman, Sally, has Alzheimer’s Disease. I spend two evenings a week with
Sally and her husband, Aubry, eating supper, going for walks, and listening to
Aubry’s reminiscences about his life with Sally. He tells stories about her that
he had learned from her family and friends along the way.
In her earlier days, Sally was a bookworm turned research
librarian. She was also a forthright woman who became a community activist. She
had a keen wit and a sharp tongue. She was known more for her intellect than
her domestic skills. She “wore” her braininess proudly. Now, however, Sally’s
brain is her worst enemy. It is in the process of slowly destroying her and there
is nothing that can be done about it.
Recently, as I was thinking about Sally’s relationship with
her brain, I remembered something I used to ponder concerning myself. Seventeen
years ago I was suffering through a serious depressive episode, one that made
me realize that I probably needed to get help. I hadn’t been able to identify
such spells as depressive in the past. I took my moods for granted as did those
around me. But this time I looked back and made sense of the fact that I had
been experiencing such states of sadness and despondency since I was about
eight years old (I was then 28). The dark moods went away but always came back
more intensely and for longer periods of time than before. In my mind, suicide had
become an option.
I, too, had always been known more for my intellect than
anything else. I was a child genius who enjoyed the benefits of a classical
education and earned a Ph.D. in English. I am a former university professor and
award-winning public radio journalist. I, like Sally used to, “wear my brain”
proudly. During the aforementioned depressive episode, however, I pondered the
irony that while my brain was my dearest friend, it could annihilate me if
given the chance. Over the years I had stopped thinking about this as much
because the day-to-day reality of living with bipolar disorder tends to take
away the luxury of existential ruminations. Sally’s struggle, however, has again
brought this awareness about myself to the forefront of my mind.
A while back, Sally’s son-in-law asked me how I knew Sally
and for how long. I told him that I had met her at church a couple of months previously.
He responded “Oh, so you never knew Sally.” I replied, “She is still Sally.” I
think I made him a bit uncomfortable with this statement. His discomfort reinforced
an awareness that the people who knew Sally before the onset of what Aubry
calls her “condition,” seem to be rather unsettled by her as she is now. I have
come to the conclusion that this is because they have memories of Sally to
compare her with as she is now. Sally, now is incapable of being that woman anymore—the
woman who among other things, was devoted to fighting for the rights of others.
Again, this unsettled me, because there was a time when I
was well loved, admired and considered successful. People wanted to be around
me, to get to know me, to spend time with me. My family in particular, (my mood
changes excepted), saw me as the woman who could do anything I had set my mind
to do, and I could do it all extremely well with a minimum of effort. I was, a
golden girl, lovely, bright, sunny, smart and witty. When I finally did start
seeing professionals during that depressive episode 17 years ago, the people
who knew me had to face the fact that I was in certain ways, a broken person
compared to the vision of loveliness that they had pegged me as being for so
long. I have, sadly, lost many friends because of my condition. And my family
struggles along with me in light of it.
I am, however, much more at peace with myself these days. I
have come to understand that everyone changes and grows, mental illness or not,
Alzheimer’s or not. Sally cannot win the battle she is engaged in with her
brain. It will kill her. I only hope for those who know her that it won’t be
too soon. I, however, stand a fighting chance in my own struggle with bipolar
disorder. It is one battle I intend on winning.
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