Recollections
of Recovery: An Alphabet of Emotions from Anger to Hope
By S.A. Green
By S.A. Green
Poetically Peeling the Mask of Stigma
Note:
The following text is an abbreviated version of “Recollections of Recovery: An
Alphabet of Emotions from Anger to Hope” published for the Center of
Rehabilitation and Recovery, a project of the Coalition of Behavioral Health
Agencies, Inc. in the years after Ms. Green's diagnosis of bipolar
disorder.
Anger
When I went to the drugstore to
pick up my medication, the pharmacist informed me she could not fill
prescriptions for psychotropic drugs. I insisted she was supposed to do so
according to Timothy’s Law, state legislation to ensure that insurance
companies cover physical health and mental health medications alike.
Perhaps inadvertently, she said,
“You’d be surprised at all the things we’re supposed to do that we don’t.”
Betrayal
I wanted a psychiatrist who was not
influenced by drug companies. Instead of asking prospective providers where
they went to school, or whether they were board certified in psychiatry and
neurology, I asked about their relationships with the pharmaceutical industry.
I started to see a psychiatrist who
told me he had cut his ties to drug companies. However, one day he suggested an
exorbitant formulation of a particular medication.
I told him I was outraged that he wasn’t recommending the regular pill, or a cheap generic. He responded by prescribing an antipsychotic with sedating side effects.
I told him I was outraged that he wasn’t recommending the regular pill, or a cheap generic. He responded by prescribing an antipsychotic with sedating side effects.
Did he want to muzzle me
chemically, like Russian dissidents who received a diagnosis of “sluggish
schizophrenia”? I, too, showed symptoms of “perseverance” and “struggle for
truth.”
Confusion
Confusion is having more pills to
take than you could keep track of if you were normal—and then trying to keep
track of them while you are on those pills, and psychotic.
Determination
I remember a morning
during an episode of depression, when I couldn’t figure out how to get out of
the bathtub. As I struggled, it struck me that it had been easier to write my
doctoral dissertation.
Somehow, eventually, I did it,
making little waves. Maybe I did it the way flowers sprout from cracks in the
asphalt—cracks I believe they make in their blind struggle to reach towards the
sun.
Elation
Being manic had its good sides,
especially when I was a square twenty-something who didn’t do drugs. It
broadened my experience with the spectrum of elation.
During one episode, I roamed the
streets in the wee hours of the morning with a stranger who was used to
artificially induced highs. He said, “I don’t know what you’re on, but I wish I
had some of it!”
My manic self would think, “But
yes, I can bottle it! I can sell spirits of mania in blue glass bottles, each
with a message, like the ones sailors toss from a sinking ship, hoping that the
message would find a reader. And let me see… these glass bottles at the
discount store on the corner are a bargain. Let me order a few dozen, so I can
have prototypes on hand for the next convention of behavioral health
providers...”
Whether you want to start a
business, jump into an affair, plan your presidential campaign, or conduct an
imaginary orchestra in your living room, the elation in mania gives you energy,
self-confidence, and an infectious happiness that makes people say, “yes.”
Grateful
Although I do not lack self-esteem,
sometimes I am surprised my husband married me. It must be difficult to deal
with a woman who buys eight wedding gowns on eBay before you’ve even proposed.
I am also grateful because family
and friends take me to hospitals in the middle of the night, visit me in
psychiatric wards, and insist I see doctors when I think, with manic
exuberance, I've never felt better in my life.
And they do one thing more. They
prevent me from taking what cripples so many people with mental illness: the
sick role.
Glibness
“When do you want to come back to
see me?” asked my psychiatrist.
I liked him. He was smart, decent,
and genuinely cared about me. Since we lived in a small community, we had “dual
relationships,” if not "triple relationships." He didn’t want to
complicate matters further, or risk exploiting me, so he never charged me for
visits.
We had already established that I
wasn’t quite myself, but he didn’t know I had no idea what day, month, and
perhaps year it was. I said smoothly, “Oh, I don’t have my appointment book
with me. Can I call you?”
Concealing impairment, adaptive at
work and at school, but not everywhere, had become an inseparable part of me.
Hopeful
We have images of mass violence
welded to mental illness, and disparities in health and mental health care. But
we also have peer services, supportive housing, trauma-informed care, crisis
respite centers, and more.
I do not foresee an end to stigma
and discrimination in my lifetime, but I am hopeful for the next generation.
No comments:
Post a Comment