Thursday, May 30, 2013

Honoring and Understanding Our Other Selves

Honoring and Understanding Our Other Selves
By Gayle D
The evil twin of my split personality emerges when I am anxious, can’t think, or am overtired. She, or he, wants attention and becomes more assertive, or aggressive.
The art work I create from both perspectives is a reflection of my inner life. Spirituality can also be seen as a compromise, or a cohesiveness way to honor oneself. 
My evil twin appears to hinder me, but my true friends or relatives understand the deeper layers of my moods and personalities. There are many colors ranging from very light, almost mystical, to dark and gloomy, like the need to get under the covers on a cold winter day.  My moods also range from perky and full of life to sad and depressed. The feelings of fulfillment come out on the other side.
Like the "shrinks" say, you’re like an audience participant rather than yourself, and sometimes there is popcorn or applause after the show.  I did have some art shows. As it was explained to me, clinicians should know and understand that there are many aspects of the whole person: the human, the spiritual, the body, and the medical. You are not the illness; you are yourself, first.
Holistic therapy with herbs, if you’re into that combination, is great for the immune system and looks good inside and out.



Dark Night of the Soul

Dark Night of the Soul
By Heather
It is my hope that in sharing my story, it may inspire some and help others along their own journey of recovery. Abraham Lincoln once said, "Remember in the depth and even the agony of despondency that very shortly you are to feel well again." 
There was a time in my life when I thought I would never be myself again. I believed in nothing and in no one. Life as I knew it was over, taking with it my soul. However, I can assure you that despite all the suffering inflicted by mental illness, there is hope for recovery. 
A few experiences I've encountered during my battle with bipolar disorder included that of depression, mania and psychosis. I had a relatively normal childhood. The only person in my immediate family who was diagnosed with mental illness was my grandmother. I believe my condition arose from genetic predisposition as well as environmental factors.  
At the age of 19, I began having unexplainable physical symptoms. For approximately two years, I dealt with chronic head, neck and stomach pain. At the age of 22, I began having bouts of depression that came in waves, and lasted about four years. I was prescribed antidepressants which never had any lasting effects. During this time in my life, I was involved with relief work in Denver, Africa and Venezuela. I returned home to Pennsylvania to attend nursing school, which I was unable to complete due to my symptoms.
My illness began to progress in 2006, resulting in my first hospitalization. At that time, I began having severe sleep deprivation, which eventually led to psychosis. The experience was the most terrifying moment in my life. I was aware of how my mind should be functioning, but it was in total chaos—and there was nothing I could do to control it. I became religiously preoccupied believing the reason for my torment was demonic possession. 
Following my discharge from the hospital, I resided with my parents for one year. As my symptoms intensified and regressed, I would rarely leave home, and spoke few words to family members. I felt only fear and the absence of love. Everything I once loved, I now hated. Thoughts of heaven and hell consumed my mind. Saint John of the Cross described such experiences as "The Dark Night of the Soul," which I easily identified with. 
In 2007, I went without sleep for approximately three weeks. Sleep deprivation combined with delusions pushed me over the edge to the brink of insanity. Somehow, I formed this idea in my mind that Judas Iscariot needed to be redeemed from hell and I was the chosen one to complete this mission. I came to the conclusion that in order to rescue Judas, I must die. Keep in mind, that I was not suicidal. This may seem far-fetched, but in my mind it was real. I then proceeded to jump headfirst out of a second story window believing this would accomplish my task. 
Amazingly, I escaped with only a few minor cuts and bruises. This episode landed me in Western Psychiatric Hospital for a two month stay, where I made progress and received the proper treatment. I finally came to the realization that medication was necessary to restore my mind and normal life functioning. With some time, the doctors eventually found the correct medication for my body and I began to feel like myself again.
I cannot say all of my experiences with bipolar disorder have been bad. During mania, the world seems to take on a different light. Everything is brighter and more glorious. I feel as though the spiritual realm is not so distant, and I love as I've never loved before. I consider my illness a blessing of some sort. It enables me to see the world more vividly and stay closer to God. It has also made me more compassionate, thoughtful and analytical. 
Today, there remains much controversy and stigma surrounding mental illness. I try my best not to allow other people's opinions to bother me. The majority of people I meet either don't have a good understanding of mental illness, or are just fearful of it due to ignorance. I desire to help others overcome their battles with this illness and walk alongside them through their personal journeys of recovery. I strongly believe that with the help of knowledgeable and compassionate professionals, family support and individual determination, recovery is indeed possible.


From Fear to Feasibility

From Fear to Feasibility
By Connie
I was asked to write about coping with my mental “illness.” For that purpose I need point out that I can’t always separate “dysfunction” from “disease.” I’ll have to write about both.
My father had a violent temper and my mother was a ‘malignant narcissist.’ My sister was beaten daily for being born with a birth defect and I hid in the closet. Fear kept me captive most of my life. We were told what we couldn’t do, and how we were a burden. Mother often told us “Don’t you ever have children or you’ll regret it, like I did.”
In 1982 my husband of ten years left me. I was forced to make some changes in my life. I went to seminars, workshops, and even had one good therapist for a few months until she, too, left. I put a lot of knowledge in my head, yet felt immense mental anguish.
Classic bipolar mood swings began in the early 1980’s. I’d lie in bed for weeks then I couldn’t stop racing in circles for 4 or 5 days. I had a phone number I found in a newspaper and I’d pick up the phone, dial 6 digits, and hang up. Eventually, I found my way to Recovery, Inc. meetings. With their tools, I reduced the symptoms to a manageable level and went on with my life several more years without medication.
In many people’s view I was successful. I finished college completely on my own, and went to work in the mental health field. I had the most incredible work environment. When I had problems, my supervisor told me to go into the hospital and report back for work when the doctors said I was stable.
The hospital experience was a nightmare. Summer in Florida and no air conditioning, no windows that opened, smokers everywhere, bathrooms broken and feces smeared on the walls. The only night I slept was the night they restrained me and gave me a shot of Haldol and Ativan. In those days it took 28 days to treat you, if you had insurance. I stayed home another 2 weeks to catch up with sleep, then returned to work. That was the only full-time job I kept more than the length of a school year.
Under supervision, I was billing as a therapist. I was a good listener, but never once thought to express my needs or wants to anyone. The job had been paying barely minimum wage, with the expectation of licensure and better pay after 5 years. But, the state didn’t accept my supervision because my degree didn’t match my supervisor’s. I moved to New Mexico seeking greener pastures.
The move started the pendulum swinging again. It took years to get my mood stabilized. Eventually, I began receiving social security disability.
In New Mexico I was active with AMI-NM, president of the Consumer Council, and director of the Mental Health Association in Las Vegas, the location of the only state hospital. I was also on committees in Santa Fe with the Department of Health, Division of Mental Health. I’d have done fine, but I found myself in another dysfunctional relationship. Again, I lost myself. I was no longer Connie the professional; I was Connie Jean the wounded child.
I’ve been homeless, afraid, almost frozen to death since then. I ended up in western North Carolina where I managed to get housing with HUD assistance and started to get my life together. I founded SEASCAT, which stands for Supportive Environment for Adult Survivors of Child Abuse and Trauma. I thought it was for my ex who was a dissociative identity disorder, but it’s more. I got back into another relationship much like my last one at about the time my mother suffered a stroke and needed me to be her caretaker.
When I hit bottom this time, I found Co-Dependents Anonymous and, finally, a therapist who took Medicare with a very small co-pay. It’s been work, but the puzzle is finally coming together. I had the pieces, as I’d gathered them a few at a time over the past 30 years.
I have a God of my understanding and gratitude. I find peace working in my plots at the community garden, and in listening to contemporary Christian music. No longer do my actions come from a place of fear and anger. The life I knew is finally over, and a life of hope has begun.

Medicine is a Catch 22

Medicine is a Catch 22
By Tanya
You lose the psychosis but gain weight and feel run down
I am 41. Mental health first started after my daughter was born 14 years ago. I got paranoid of her dad; he had threatened to kill me and her one time. I would throw out things he touched like toothpaste or milk. When we broke up I was fine.
I was fine at my next job until my ex fought for visitation. I got paranoid and would listen for others talking about me. I thought I was being watched. I thought everyone there hated me. I was having anxiety and panic attacks. I have had to lay down at work and take a pill. They diagnosed me with post traumatic stress disorder. I would cry for no reason at work. My tears were sticky.
I went out on medical leave many times yet trying to hold onto the job I loved. On medical leave I wrote a book of poetry about everything I have ever been through. I had it published on lulu.com; life is like a poem. When I wrote the poetry I was driving around listening to voices. I believed the voices to be real. I would drop my daughter off at school and drive around until it was time to pick her up. I put 26,000 miles on my car in six months.
I drove to a police station and said I needed to get into a witness protection program and I did not know why. But I heard a cashier and a voice say it so I wound up in the psych ward and was put on a stay of commitment. I was on zyprexa for paranoid schizophrenia and gained 80 pounds. My doctors thought I would be a diabetic and changed me to geodon. I was also on an antidepressant because after a while I had suicidal thoughts coming out of nowhere.
I have never attempted to kill myself, but was close once. I tell people to not be alone, to tell someone that you are having bad thoughts and go to sleep. When you wake up the thoughts should be gone.
I went back to work three times trying to hold onto my job. Once I remember how strange it was that nothing was going on after being on medicine. My boss did not want me back. They said I was only doing 20 percent correct work. During this time I met my boyfriend of ten years. I went off geodon like three times or more because I thought it tasted funny or would do different things to my brain. Each time I went off medicine different things happened.
I thought people would poison my food. I once found a pill in my chip bag, which I swallowed. My daughter said, “They want you to sleep mommy.” I only ate what my daughter would eat. When she wasn't there I would not keep food in the house. I thought I was god and wrote the bible for the future. I was writing in different languages and gave three of my notebooks to a church and told them to hide them. I would not shower because I did not want to change things.
Someone told me I scared a lot of people. I did not talk to anyone and my boyfriend broke up with me and my daughter was at my mom’s. I was alone. I have seen angels with a bright light behind them, a man wearing a white robe, people who are dead, a space ship and a cloud with a man on it. I have also seen a cloud form a cross and a shadow of a man walking in the center on Passover.
Still, all of this has been real to me and even on medicine I still think some of this is real. How my aunt put it, “the mind is a powerful thing and can do amazing things, if you are ill it may need help.” So I take my medicine everyday and now work a part-time job and will be volunteering at a homeless shelter. I would like to go back to school for social work and help others like myself.
One thing medicine does is make me not remember what I have been through. It also calms my brain down. When on medicine everything is normal yet I do not believe I am sick and need to be on medicine. I have always been forced on medicine from the hospital or on a stay of commitment.
When I quit my medicine I quit all of it and now no longer need it. I got over post traumatic stress disorder by forgiving the person I was most scared of. My daughter and boyfriend only want to be with me if I am on medicine. I hope this battle is over and everything will continue to be normal.
I am trying to watch what and how much I eat and get out walking. I also have low motivation and energy. On medicine I am not artistic and cannot write like I can off medicine. This only covers about one third of everything I have been through.
Note: Tanya currently takes Zyprexa every day. She has gained 70 pounds and says she is the heaviest she has ever been, but despite low motivation and energy, she manages to work twelve to twenty hours a week.

Parachute NYC: A “Soft Landing” for People in Crisis

Parachute NYC: A “Soft Landing” for People in Crisis
The New York City Department of Health and Mental Hygiene announces the launch of Parachute NYC: an innovative citywide approach to provide a “soft-landing” for individuals experiencing psychiatric crisis.
When someone is in crisis—but not at imminent risk to self or others—s/he can be referred to Parachute NYC by calling 1-800-LIFENET. The person will be seen at home by an enhanced Mobile team within 24 hours of the referral. The enhanced Mobile team will have the ability to work with the person as frequently as needed—even daily—for up to one year. The team will help the person to develop a network starting at the first meeting. This network will include the person and other people s/he chooses, such as family, friends, vocational staff, etc.
If the person receiving services needs a different level of care than can be provided at home—and is not at imminent risk to self or others—s/he can be referred to the Crisis Respite Center. The Respite is a home-like, warm, supportive and safe environment for people to stay during times of heightened distress. People may stay at the Respite for up to fourteen days. During their stay, Respite guests will continue to work with the Mobile team. The Respite is staffed with a mixture of peers and behavioral health professionals who are available 24/7 to offer peer support, wellness education and skills building. At this stage, Mobile and Respite services are available only to people living in stable housing.
People who are not interested in receiving treatment from the Mobile team may also stay at the Respite (e.g., someone who already has a mental health provider but is experiencing or anticipating a crisis). These individuals must provide a current clinical evaluation or consent to an evaluation by the Mobile team.
There is significant peer involvement in every component of Parachute NYC; besides mental health services, peers will work as peer health navigators to integrate medical health into the continuum of care.
All referrals to Parachute NYC are made through 1-800-LIFENET.
Parachute NYC also includes a peer operated Support Line for people to call when they are experiencing emotional distress to connect with a trained operator who has had similar experiences. Anyone can call the support line by dialing 646-741-HOPE. All services are confidential and there is no need for a referral.
Currently, Visiting Nurse Service of New York provides enhanced Mobile services and Community Access provides Respite for residents of Manhattan ages 18-65. In Brooklyn, services are exclusively for young adults age 16-25 experiencing a first episode of psychosis. Woodhull Medical Center operates the Mobile team in Brooklyn and Respite is provided by Services for the Underserved for 18-25 year-olds and by New York City Children’s Center for 16-17 year olds. The Support Line, also operated by Community Access, is available to anyone in New York City. Services will open in Bronx and Queens, again for people aged 18-65, in late 2013 and early 2014, respectively.

Please visit our website for additional information: http://www.nyc.gov/html/doh/html/mental/parachute.shtml 

Recovery Requires the Right Kind of Support

Recovery Requires the Right Kind of Support
By Diana
For me, it’s all about moving forward
I used to think of myself as mentally ill, or manic-depressive. I lived my life as if I were my illness. As I experienced recovery, I learned that I had potential for much more. I began to think of myself as a person with an illness in my brain.
When the right medications came along and fixed the broken parts of my brain, I was able to finally overcome the thoughts and feelings that had defined me as an illness. I discovered I was human like everyone else and I deserved a good life. I also discovered it was up to me to make my life good and to make it count. I began by placing a different set of expectations upon myself.
My journey with mental illness began soon after the birth of my baby in 1981. I was hospitalized for what would be the first of many times. What we thought was to be a short hospitalization turned into a year and a half of medications, psychotherapy, suicide precautions and hallucinations.
I was dependent upon the hospital staff to meet my every need; and I was frightened by that same loss of control over my environment. However, nothing was more terrifying than my own loss of control over my thinking and behavior. I was tormented by voices that shamed my every move. I felt hopeless.
For the next fifteen years, I was hospitalized over thirty times due to (thankfully, failed) suicide attempts and my inability to care for myself. Most of that time was spent in a reality that no one else could understand. I often referred to myself as “Queen of the Alphabet."
In retrospect of those years, I recognized a foundation of hope, which I fiercely protected, in order that I would someday lead a life outside of my illness. I yearned to be like other adults who worked and supported themselves. I craved financial independence and dreamt of a home that I myself could pay for without the aid of my parents and social security disability insurance. I wanted a partner to share my life with and I wanted friends with whom I could feel comfortable and be myself with—friends who would like me for being me. At this time in my life, I am happy to say that my wishes have come true.
My recovery from this illness did not occur overnight, nor did it happen in a vacuum of the right medications and my own motivation. Granted, I needed (and still need) the right medications to clear my thinking and balance my wild emotions, but without people in my life who believe in me and give me the chance to believe in myself, I would not have come this far.
There is one pivotal moment that stands out when the direction of my recovery changed. I had recently started a new medication that was working well and I asked my therapist how to live the life that I wanted. She began her answer with, “Well, I don’t want to give you any false hope.” That statement was all I needed to hear to trust my own inner knowing. I see now that she was focusing on my illness instead of my wholeness and my instinct to get well and stay well. I walked out of her office and removed myself from that way of thinking and have never looked back since. There is no such thing as false hope.
In this past year, memories of abuse surfaced after twenty years of lying dormant within my mind. I had to quit my job in order to move through the trauma. But, this time I had more emotional and mental strength.
If I use all the resources available to me, I trust that my journey will be smooth and steady. I often experience feelings of hopelessness around recovery, but I take very good care of myself and do whatever it takes to rediscover hope.
My prayer is that all persons with serious mental illness can reach a level of wellness that they never imagined possible. Recovery means something different to every individual, and while there is no cure for serious mental illnesses, there is support, medication, education and advocacy available for us all.
Let us move forward to expect Recovery—from ourselves and our family, and our mental health delivery system.

Bruni in the City: The Kiss

Bruni in the City: The Kiss
By Christina Bruni
I kissed a guy. He leaned in. It took years to get to that kiss.
The guy I liked didn't like me. He couldn't reciprocate even though clearly I had signaled my interest. It was a soft spring day two years ago and we walked in Prospect Park. I wore my low-cut inspi(RED) tee shirt and a black skirt. We parted ways at Union Street and I smooched him before departing for the F train. I felt giddy, then deflated when he turned away.
That was bakery line guy #87. Number 88 is at the counter: and holy cannoli he knows what to do. He leaned in. He thinks I'm cute. He tells me I'm skinny so I know he's not blind.
How do you get experience? I've been on the dating website for people who have diagnoses, and it doesn't thrill me so I closed my account. I feel I don't want to have to be a caregiver to someone who doesn't take his meds, like the guy who messaged me and said he refuses to ingest poisons, yet believed ghosts were singing in his attic. He sounded proud to be mad.
To manage my own life is about all I can handle on most days. So I turned instead to a networking service that requires peers to be actively engaged at a job, in school or via volunteer work. It was there I met my match.
Forgive me: I kissed him goodbye.
We had a lovely time at MoMA. We sat in the cafe at the bar looking out on the street. I ate the three-cheese plate with olives, flatbread and fruit chutney. He said, "You Italians know how to indulge." I turned and flashed him a smile that could light up the room.
It's funny how easy it is to be relaxed when you like someone and they respond so you can be yourself. I walked close by his side through the rooms. We browsed the Music 3.0 exhibit. I told him I played Run DMC on the radio when I was a disc jockey and quoted their song lyrics in my memoir. He told me he saw them in concert back in the day.
I'm 46. I recommend a mid-life boyfriend. Women get bolder as we get older, the result of a scientifically-proven chemical thing that happens in our bodies. We've come to a point in our recovery where we have nothing left to lose. We've already lost our minds so there is nothing else we could ever fear losing.
This motivates me to take risks that other people wouldn't dare take. Rejection and stigma and failure don't carry that kind of weight for me.
Mr. Right Now is a smooth operator. He's cool, warm and funny. I give a guy credit for having a sense of humor and effortlessly deploying it. It also went swimmingly on our other dates.
I don't have a crystal ball so can't predict the future, yet I know one thing: I want dessert.
Life is sweet.